Today I read over a friends
new blog. Her posts are so real and full of raw honesty. She has been T1D for 30 years- she's kinda a pro. She also was recently diagnosed with gastroparesis. You can read more about her and her T1D journey over on her live
journal. She is one incredibly strong lady folks.
I first met her over 6 years ago, when her and her husband brought their little family to church. I connected with her son quick; he was two at the time I believe, and so sweet ; ) Her youngest wasn't but a few weeks old. I don't think I realized right away that she wore a pump, (she was and still is a pro at keeping that thing under wraps ; ) but we knew she had Type 1 diabetes. At the time, I had no idea what T1D was- I just knew the basics like most people. She wore a machine that helped keep her alive, pricked her finger alot, and always had snacks and juice around. As I got closer to her and family, I still never really asked about her diabetes much. Its not like that's who she was, she was just a loving, kind and wonderful friend. I never had an idea the struggles she went through.
I remember one particular time asking about her pump and how it worked. The way she explained it, I thought she just stuck that little piece of tape on and went. I didn't understand the needle part, or the fact that she had to change it constantly and couldn't just whip it off whenever she wanted to. The concept of the cannula was lost on me.
The part that saddens me about all this, is that
I didn't care to ask. Sure, I loved her very much and wanted (still want) her to be healthy, but I never really cared to know why she had the machine attached, why she pricked her finger. What was blood glucose?
Well who cares as long as she knew what she was doing and how to take of herself? I thought.
Oh my. How very wrong I was.
Larissa is the first person I called when I was diagnosed. We were on our way home from the doctors office to pack for the hospital when I called her. I was completely composed and fine until I heard her sweet voice on the other line- I sobbed so hard I could barely get out any words. I remember saying, (in between sobs) "I'm okay, its really okay. I'm just scared". She was very sweet and reassuring... Although looking back on it now I realize how hard it must have been for her to console. Its not like she could say, Oh its a breeze! You'll do great, no worries!
Throughout this journey Larissa has been one of my rocks. When I was trying to decide on whether I wanted to try a pump, I asked her to show me her site at church one Sunday. She has the whole pumping thing down to a science, I can never even tell where her pump is half the time. She very willingly showed me her site and also her Dexcom. She's always interested in whats going on with my diabetes, and I know she prays for me daily- this means the WORLD to me. Her support has been so fundamental in my acceptance of this disease. I hope she reads this- I LOVE YOU LARISSA!
So I said all that to say this, do you ever feel frustrated with peoples disinterest in this disease? I don't know about you guys, but I love to tell people about type 1 (hopefully this is not an attention-seeking trait, but rather a desire to educate). Sure, it can get awkward, especially when its strangers, but sometimes its just nice to vent on people and explain to them what you have to deal with everyday. Before being diagnosed, I had no real interest in learning about T1D. I like to think, well rather hope, that I am, in general, a pretty compassionate person.
But I have to say this. Even the most compassionate, loving people have NO idea what you face sometimes. That's why support from other T1Ds is crucial. I'm thankful tonight for my support system : ) Larissa is just one the few who have kept me sane through all of this. My family aslo, are always willing to learn and try to understand all the aspects of this disease. I have other friends, great ones that do their best to support me even though they don't necessarily belong to the diabetic community.
Of all those people though, Jesus is my favorite : ))