NEEDLES

"Oh my word I hate needles"

"I am legit scared of them"

"I could never give myself shot"

"How do you do that?!"

Cause I would die if didn't Susan. I would die. 😂

Seriously though, I am SO thankful that I was not deathly afraid of needles when I was diagnosed. I remember the first time I gave myself shot. I started to do it, clenched up and drew the needle back right before I hit the skin on my belly. Then I just took a deep breath, and stabbed myself.

I've been doin it ever since 😆

The insulin prescription program accidentally sent me VIALS of insulin this last time. Of course, this was right when my endo office shut down cause of the 'rona and I had limited access to figure out how to fix the problem and get some pens. So, I just called my regular drs office and asked if a nurse could call me in some syringes. "What size?" she asked. "Just the smallest size there is".

SURELY THIS IS NOT THE SMALLEST SIZE KAREN. SURELY.

This is the syringe in comparison to my usual BD pen needles.

Man! I am not scared of needles, but it took a little gumption to stick that sucker in myself. 😆😭

I can honestly barely feel it though *shrug*

Whats the biggest shot you've ever given yourself? I know some of you have to take IM (intramuscular) injections for vitamins and stuff. I know thems BIG 😳

You number ☝ for hitting your thigh with those bad boys!

I almost quit social media AGAIN... and heres why

"No one will follow me if I don't post attractive pictures of me showing off my medical devices" 

"I am not like everyone else because I don't need much insulin, and my sugar stays in range without much effort, and I don't have a pump or CGM"

"I am not a 'true' type one diabetic"

"I am not relatable" 

Shew! Felt good to get that out there! I want to talk about comparing yourself to others... whether that be other diabetics, famous people, or peers. 

All of the phrases I listed above are things my inner self has struggled with, especially upon my recent re-enrtry back into the diabetes world on social media (Instagram specifically). I found myself straight DEPRESSED. Discontent with being device-less, wishing I was more like every other diabetic so I could be relatable, wishing I had more followers, more likes, more comments and better pictures. 

And so I was like, forget this! I was much better off without social media. I was happy with my glucometer and MDIs. I didn't even hardly THINK about having diabetes. Now all the sudden I'm stressed about not having devices, not having enough followers, and being so different from every flourishing diabetic on social media. UGH. 

I had a well-meaning follower tell me one time, "Maybe your a little bit cured!" because I cut out my long acting insulin while on a mission trip. "I would've been in DKA!", she says. 

I was recently refused the opportunity to participate in a clinical drug trial by higher ups because, "My pancreatic function was too high" although my doctor, research coordinator, and diabetes educator agreed I was PERFECT for this study and classically diagnosed type one diabetic (abnormally high GAD antibodies and all). The drug they were testing was supposed to stop or delay the autoimmune process. 

I don't have my pump or CGM right now because I don't have medical insurance, and I was totally fine without them until I got back on Instagram and felt like a total outsider to the diabetes community. 

I have felt like an outsider most of my life, ever since I was old enough to realize how different I am. I dress different than most people because of my personal convictions, I don't do things other people do or go the same places as other people my age. So its not a new feeling. 

When I was first diagnosed I was SO excited to go to a women's conference hosted by our local JDRF chapter. I was 16 (newly diagnosed) and with my mom. All the girls had devices. They all had been diabetic since they were 5 or 6 years old. I felt so, "not in the loop" around these people who I was supposed to share common ground with. This group that was exclusive, with a focus on a rare disease and difficult lifestyle that I and everyone else there had. Surely I should have felt normal here!

But I didn't. And you know what? Its OKAY to be different. Its OKAY to share common ground, but on different levels. Your self worth does not come from how relatable you are to people on social media that you probably don't even know or other diabetics who have better or worse numbers than you.  

Its okay if you take 5 units of Tresiba and have a high carb ratio! Its okay if you need 50 units of long acting and barely any short acting! These things do not make you type one or not type one. I have autoimmune diabetes, and my bet is you do too. I can grantee we are different in how we manage or illness and you know why?  Here's some relieving news: WE DONT LIVE IN THE SAME BODY OR HAVE THE SAME BRAIN! Autoimmune diabetes IS NOT YOUR FAULT. You have little contol over what your body does or does not do.

For me, my fulfillment, my self-worth, and my overall contentment is based in Jesus Christ. Its so easy to look at other people (especially as women) and wish we were just a little skinnier, a little more popular, or had clothes that were a little cuter or more revealing. 

But YOU my friend... YOU are SO much more than what everyone else's social media posts tell you you need to be. You be YOU. You do YOU. 

2 Corinthians 10:12

"For we dare not make ourselves of the number, [for they] comparing themselves among themselves, are not wise"

1 Corinthians 6:20

"For ye are bought with a price: therefore glorify God in your body, and in your spirit, which are God's"

So whether you are a mom struggling to fit into every mold that every other mom is trying to smoosh you into, or you are a teenager discontent with how you pose for photos, how you look, or what you have to wear, or a diabetic who feels like no one gets you, please remember you are unique, perfect and I think you are AWESOME. 

So I almost quit social media AGAIN. But I didnt. Because I want to keep sharing, learning, and relating in any way that I can.

Larissa and Bailey

Larissa: The sweet, red headed young mom that came to church 13 years ago. Larissa with a tiny newborn girl and 2 year old little boy (who called me his girlfriend by the way for SEVERAL years, but lets not embarrass that NOW 15 year old!). 

Larissa: The type one diabetic that showed me her pump site one time. I remember thinking something crazy about how she changed her site... and I can't exactly remember what I thought but something like she had a thing that stayed in her all the time and she had to tap into it every three days? Like a port? I would later chuckle at the irony of this ignorance. 

Larissa: The first person I called after I left the Drs office with my type one diagnosis close to 8 years after we had met. She cried with me as I tried to explain everything to her through my tears and, "I'm okay I'm just scared".

Larissa: The only person outside of family that I let come see me in the hospital. She brought a stuffed horse and cards with hand drawn pictures from her babies. 

Larissa: The PANCREAS TRANSPLANT SURVIVOR and THRIVER who does not take insulin anymore, but continues to deal with the repercussions of being type one for 30 years before God gave her a new pancreas. 

Bailey: The girl I followed on Instagram when I discovered the massive type one community. She was type one and lived close (I didn't realize how close at the time) and didn't know anyone else with type one. 

Larissa: The oh so considerate and sweet person who I was unaware also followed Bailey. She contacted her (or the other way around) and said hey! we all have something in common, lets get together!

Bailey: The girl who relates to me on a personal level that many cannot. The girl who pulls her checker out before meals, injects insulin the same way I do, and FAWNS with me over Myabetic bags.

Bailey: The girl who offers her extra supply of Humolog when she knows I don't have insurance. The girl that gets and makes diabetes jokes and understands my lingo. The girl who I see barely once a year (but hopefully that will change soon). 

I love you both so much. Your support means the world, your company is precious. There is nothing like being with people who battle with, and for you. So shout out to my friends. My friends who understand. My friends who love to eat carbs with me (YAS queens!). My friends who buy me awesome Christmas presents. My friends who make me feel less alone on this journey. 

Ya'll are the BEST. 

 Bailey

Larissa

Miss Independent

I am obnoxiously independent.

“Did you bolus for that?”

“Should you really be eating that?”

“Have you checked your sugar?”

“What was it?”

All these questions, and the looks of reproof that generally accompany them, bug the snot out of me. This is my body, my disease, let me deal with it. I don’t mind the occasional, “How has your sugar been lately?” or kind comments or questions in regards to how I’ve been feeling, but I hate to be bossed around by certain people. Honestly it only bothers me when it’s my family nagging, or my close friends making an insensitive joke when I eat ice cream. Like, really? Could you not?

Then I realized, Kelby, you are just ignorant. Ignorant to the fact that those questions, comments and concerns, although sometimes not expressed with tact, are the results of genuine concern for your well-being.

Now, I’m not saying this makes all those comments valid, and that there aren’t some things better left unsaid. For example, if you’re going to tease someone for eating sweets, the last person you should do that to is a type 1 diabetic. I don’t mind good natured jokes, and I often engage in them myself, but sometimes it’s not appropriate. The best way to know is to ask the diabetic themselves: “Hey, does this statement bother you?” “Is it okay to talk about this?” If it’s me, you don’t need to worry about asking, I’ll tell you myself if something bothers me, but not everyone is that open, so just ask. Be sensitive.

On the opposite side of that is your family. I don’t know about you- but my family loves me. A lot. They just want me to stay alive and be healthy. Sure, I can’t stand it when my mom looks over my shoulder while I’m checking my BG, and yeah, it can be annoying when my sisters ask if I’ve checked my sugar, but most of the time, it’s just because they really want to be involved in my life, in my battle with this disease. I shouldn’t close them out because they are the people I need the most.

Okay, so, you know how mentioned that phase I went through where I was forgetting and/or just not checking my BG before bedtime? A dangerous habit to say the least. I don’t have a CGM, so the only way to insure I don’t have nighttime lows, is to check my BG immediately before bed.  I came to the conclusion that not doing this could be life-threatening, and it was a habit I really needed to fix. So I asked my mom to remind me, before she went to bed, to check my BG.

The point of this post? Sometimes it’s good to eat a little humble pie, admit when you need help, and accept those aggravating comments a little more readily.

~Still learning T1D

Type 1 Diabetics Be Like...

We've all been there...You sit down to dinner with a newly acquired friend, work colleague, or your significant others family. *Click* you hit the button and your lancet produces a drop of blood. Immediate gasps, exclamations, and nervous ticks erupt. "Ouch!" *Cringe* "Do you do that every day?!" *Shakes head in pity*

We've all been there.

Like the time I injected insulin in front of a kid at work who gripped his stomach dramatically and jumped about three feet backwards.

Or my brother-in-laws little brother who starts freaking out every time I pull out my insulin pen. "Aw man I cant watch- but I have to! Ahhh man. Geez. Mmm" he proceeds to make grotesque exclamations as if he were watching the 77th Hunger Games unfold.

Lets be honest, sometimes its fun to flip people out, make them think we are tough.

Other times peoples concern/open revulsion is just annoying.

Like the following comments:

Annoying Person: "Does that hurt?" Me (wants to say): No of course not, it feels like a tiny needle massage. Me (actually says): "Yeah, most of the time".

Annoying Person (again. See what I mean?): "I could never do that!" Me (wants to say) : Na your right, you'd probably die. Me (actually says): "You could if you had to".

Kudos to all those T1Ds out there who bravely "Impale" themselves daily without a flinch.

But more kudos to those who aren't afraid to admit it hurts sometimes.

Who are we kidding? We are all stinking awesome.

~Kelby, T1D (a.k.a. Human Pincushion)

Insurance = Assurance

Last Friday I was super ticked off and upset. Last time we talked to the medical supplier working with us to get my pump, they informed us that they would file with insurance and hopefully my pump would be on its way soon. That was almost a month and half ago. So after playing phone tag for about three days, I finally got the opportunity to ask what in the world was taking so long. The answer... made me mad.

My insurance denied my pump. They said it was because my blood sugar was under such good control. So in their opinion, I don't need a pump.

Obviously, the reps at my insurance company don't have T1D. The pump is not to give me better control because my A1C is bad, my last A1C was 5.6 ( Thank the good Lord!). The pump is so that I don't have to take a shot 4-6 times a day. Its for convenience, so that when I'm running late for school I can grab breakfast, press a couple buttons, and run out the door, instead of having to take the time to prep my needle, pen and skin for an injection. Plus- I just want a pump. Which may be selfish, I just think it would make my life a little easier. So how dare they say I don't need one?? You want me to have an unhealthy lifestyle before you will give me something to help maintain the already healthy situation of blood sugars? That's not fair.

All these thoughts and more have been running through my head the past 4 days. Until about 20 minutes ago.

Scrolling through Instagram I came across a diabetic account (check her out: @diabeticoutrage). One of the posts was about this young lady (the owner of the account) who's income does not support her medical bills, the bills resulting from type 1 diabetes. She posted about running out of Lantus and going without it for two nights, resulting in the development of ketones.

Holy cow. I'm a spoiled brat. Lord, forgive me when I complain about the insurance that gives me the ability to afford the medical supplies that keep me alive. Help me never to take my blessings for granted. I can live without a pump- I cant live without insulin. What a blessing it is to have the assurance that I can afford the supplies that sustain my life. 
~Blessed T1D

P.S. This is the first time I've mentioned Instagram, but I also have an account specifically linked to this blog. Check it out: @alittlebitofinsulin

Support Systems

Today I read over a friends new blog. Her posts are so real and full of raw honesty. She has been T1D for 30 years- she's kinda a pro. She also was recently diagnosed with gastroparesis. You can read more about her and her T1D journey over on her live journal. She is one incredibly strong lady folks.

 I first met her over 6 years ago, when her and her husband brought their little family to church. I connected with her son quick; he was two at the time I believe, and so sweet ; ) Her youngest wasn't but a few weeks old. I don't think I realized right away that she wore a pump, (she was and still is a pro at keeping that thing under wraps ; ) but we knew she had Type 1 diabetes. At the time, I had no idea what T1D was- I just knew the basics like most people. She wore a machine that helped keep her alive, pricked her finger alot, and always had snacks and juice around. As I got closer to her and family, I still never really asked about her diabetes much. Its not like that's who she was, she was just a loving, kind and wonderful friend. I never had an idea the struggles she went through.

I remember one particular time asking about her pump and how it worked. The way she explained it, I thought she just stuck that little piece of tape on and went. I didn't understand the needle part, or the fact that she had to change it constantly and couldn't just whip it off whenever she wanted to. The concept of the cannula was lost on me.

The part that saddens me about all this, is that I didn't care to ask. Sure, I loved her very much and wanted (still want) her to be healthy, but I never really cared to know why she had the machine attached, why she pricked her finger. What was blood glucose? Well who cares as long as she knew what she was doing and how to take of herself? I thought.

Oh my. How very wrong I was.

Larissa is the first person I called when I was diagnosed. We were on our way home from the doctors office to pack for the hospital when I called her. I was completely composed and fine until I heard her sweet voice on the other line- I sobbed so hard I could barely get out any words. I remember saying, (in between sobs) "I'm okay, its really okay. I'm just scared". She was very sweet and reassuring... Although looking back on it now I realize how hard it must have been for her to console. Its not like she could say, Oh its a breeze! You'll do great, no worries!

Throughout this journey Larissa has been one of my rocks. When I was trying to decide on whether I wanted to try a pump, I asked her to show me her site at church one Sunday. She has the whole pumping thing down to a science, I can never even tell where her pump is half the time. She very willingly showed me her site and also her Dexcom. She's always interested in whats going on with my diabetes, and I know she prays for me daily- this means the WORLD to me. Her support has been so fundamental in my acceptance of this disease. I hope she reads this- I LOVE YOU LARISSA!

So I said all that to say this, do you ever feel frustrated with peoples disinterest in this disease? I don't know about you guys, but I love to tell people about type 1 (hopefully this is not an attention-seeking trait, but rather a desire to educate). Sure, it can get awkward, especially when its strangers, but sometimes its just nice to vent on people and explain to them what you have to deal with everyday. Before being diagnosed, I had no real interest in learning about T1D. I like to think, well rather hope, that I am, in general, a pretty compassionate person.

But I have to say this. Even the most compassionate, loving people have NO idea what you face sometimes. That's why support from other T1Ds is crucial. I'm thankful tonight for my support system : ) Larissa is just one the few who have kept me sane through all of this. My family aslo, are always willing to learn and try to understand all the aspects of this disease. I have other friends, great ones that do their best to support me even though they don't necessarily belong to the diabetic community.

Of all those people though, Jesus is my favorite : ))

Glucometer Spotings

Replace "Insulin pump" with glucometer and this was totally me the other night at work. A kid comes in with his mom, maybe his sister and probably a girlfriend. He was my age, maybe a little younger, tall, skinny, kind of sickly looking actually : / I wasn't on register, I believe I was bagging. Anyways, somehow I managed to get a glimpse of the little black case he carried to his table and I'm thinking, "Oh my gosh!! Does he have a glucometer?!" So I bag their food and take it to their table. The case is beside him but I cant see much, the table is in the way. So I go around the dinning room to do a "cleaning check" while trying to see what he is doing without looking like a stalker. Bahahaha! Sure enough though, I'm pretty positive he was checking his sugar with the one touch ping remote. Have you guys ever experienced a moment where you seen someone with a glucometer or pump? Do you also have to resist the urge to run up to them and gush out that you are T1D too?! Sadly, this would be kinda freakish of you, so you resist the urge and carry on in painful silence. I don't know what it is about seeing someone like that that makes you feel less alone in this battle. Just remember, your NEVER lone in your fight with T1D. There are probably lots of kids right in your community who have it too! Maybe one day I'll write a really cool post on how I overcame my fear factor and talked to someone i noticed with a pump/glucometer. ;)
Stay True!
-Kelby