NEEDLES

"Oh my word I hate needles"

"I am legit scared of them"

"I could never give myself shot"

"How do you do that?!"

Cause I would die if didn't Susan. I would die. 😂

Seriously though, I am SO thankful that I was not deathly afraid of needles when I was diagnosed. I remember the first time I gave myself shot. I started to do it, clenched up and drew the needle back right before I hit the skin on my belly. Then I just took a deep breath, and stabbed myself.

I've been doin it ever since 😆

The insulin prescription program accidentally sent me VIALS of insulin this last time. Of course, this was right when my endo office shut down cause of the 'rona and I had limited access to figure out how to fix the problem and get some pens. So, I just called my regular drs office and asked if a nurse could call me in some syringes. "What size?" she asked. "Just the smallest size there is".

SURELY THIS IS NOT THE SMALLEST SIZE KAREN. SURELY.

This is the syringe in comparison to my usual BD pen needles.

Man! I am not scared of needles, but it took a little gumption to stick that sucker in myself. 😆😭

I can honestly barely feel it though *shrug*

Whats the biggest shot you've ever given yourself? I know some of you have to take IM (intramuscular) injections for vitamins and stuff. I know thems BIG 😳

You number ☝ for hitting your thigh with those bad boys!

All the Feels (the good, bad and ugly)

The good: my A1C was like, 5.6 or some craziness and I am in a prescription assistance program so that I can get insulin for free now (more on that later)!

The bad and the ugly, however, is the rest.

I promised in a recent social media post that I would share with you some questions I asked my Endo at a recent visit. Before I do though, I want to explain what drove me to these questions. You need to know a little bit about my insulin needs.

Truth is- I use very little insulin (some of you might know this already) and honestly I have even thought before, "How can I be type 1?" I use so much less insulin than anyone I've ever talked to in the diabetes community. This has always made me feel like an outsider, like a type one that's "not legit". I was recently denied the opportunity to participate in a drug trial that would have been extremely beneficial to me, because my "pancreatic function was too high".

For those of you whose only experience with diabetes is my myself,  here are some numbers for comparison: I can get away with FIVE units of long acting insulin, while some type ones can need as much as THIRTY or even more.

To type ones out there for some perspective, I cant even use up a minimum reservoir on a pump and usually ended up wasting insulin when I wore an omnipod.

Now, all that to say: my endo has told me multiple times I am a classically diagnosed type one with antibodies that prove for sure that I am dealing with autoimmune diabetes. But I wanted to know for sure at this last appointment..... could I get away with not taking insulin?

The answer was a hard no. My endocrinologist told me that because I have the potential to spike to the 300s (no matter how rare it may be) that I must continue insulin therapy. She does not recommend a closed loop system because she does not see it as necessary. She does not know of any pumps with a low enough reservoir to avoid wasting insulin. We cannot do inhalable insulin for mealtime boluses because of the increments it comes in. I absolutely cannot take any oral medicinal replacement for insulin.

So I honestly feel stuck.

Stuck with 4-5 injections a day and destined to be bruised and pricked multiple times a day even though we have technology to prevent (or at least decrease) that.

Oh goodness, I know I should not complain. I am so thankful my diabetes is less work to manage than most peoples. That I sleep good at night. That I do not often deal with crazy swings in my numbers.

But what STINKS is that I STILL have to prick, I still have to stick. I feel like I am teetering on this edge of true illness and faking it, but its a quick fall to reality when I truly do not put forth effort to manage my numbers (even if its less than others have to).

I have a chronic illness. One that will never go away. I have to remind myself of this, because sometimes I don't feel "worthy" to be labeled "type one". Ugh. How DUMB.

Well, there it all is, aired out in the open. I don't understand the purpose or see a point to this, but I'll bet I am not the only one who carries these type of weights.

No matter what I may feel however, the truth that I am sure of deep down in my heart is this: MY STRUGGLES DO NOT DEFINE ME and I should never seek to find contentment by looking around and comparing myself to others.

What happened when Peter started looking around? He SANK. DONT sink. The waves of depression, discontentment, discouragement, sadness, they are all waiting to overtake you.

Remember to look at Jesus. To take his hand. To trust him and whatever he is planning for your life.

Its difficult to explain why needing so little insulin is frustrating and why its hard to be thankful for the positive. I can see how none of this may make sense to someone who doesn't live in my brain.
But oh my friends, hear this: I find comfort in knowing that I can express my feelings, the good the bad and the ugly, to a God who understands and cares about every part of me.

Loving my body (NOT as a plus sized social media influencer or totally toned, protein loving, gym-going junkie)

Okay so I had this grand post idea where I was going to share my current lifestyle choices with food, explain the change in my mentality towards food, and explain my whole journey towards that mentality as well as share how I drink my coffee and eat my salads.

Well I started typing all this and realized it was WAY too much for one post. Ha! So, we are going to start with the back story here in comparison to now, and I'll post soon about coffee and salads. This is where our story starts:

13-17 year old Kelby, when interacting with any girl close to her age:

 "OH MY GOSH if I hear one more girl say she needs to go the gym I am going to smack someone" 

"If one more average sized girl says she is fat again, I will smack myself"

"OH MY WORD YOU LOOK FINE please stop asking me 895 times if your hair looks okay!!"

Granted, this is coming from teenage Kelby. Lemme explain teenage Kelby to those of you who were fortunate enough to miss out on knowing me personally during this time of my life. Lets try to describe me in 4 words...well sentences/phrases and endless parenthesis...: 

1.  Baggy clothes (usually a floor length jean skirt and random patterned shirt)
2. "Messy" buns (Not the cute kind... imagine 4 ft of hair wrapped around itself and secured with ONE pony tail holder)
3.  Total disregard for any current fashions (meaning I probably did the OPPOSITE of what was trendy ON PURPOSE)
4.  Not even attempting to attract the opposite sex or fit in with other girls my age in any way, shape or form

I am not exaggerating. I literally did the opposite of what everyone else did because I detested girls who were hung up on themselves (even though, lets be honest, MOST teenage girls are like this because they are just insecure and trying to figure out life). But I was not like that. I ate all the cupcakes, did all the things that were NOT trendy or attractive, and just bee-bopped through life mostly happy and content with myself. 

I credit my parents and wonderful upbringing with this beautiful mentality, but also slightly faulty perspective of genuinely not caring about my body or looks.

I was dx with type one in 2015, at age 16, at which point I had lost around 10 lbs but easily gained it back with a few extra pounds in the next couple years. Contrary to what you think I'm going to say here, "I realized the importance of diet and exercise and fixed my mindset" I actually kind of spiraled downward. My whole mentality of type one was, "I can eat a cupcake if I want and you cant stop me" in addition to, "This disease doesn't have to control me or affect my lifestyle". Ouch.

That's not altogether wrong, but I was viewing everything SO wrong. My perspective was so twisted.

*Disclaimer: Just because I felt like I could live this way, did not mean I was always comfortable in my own skin. Everyone wants to have a flat stomach, be a certain "goal" weight or look a certain way in that perfect dress. But because my heart condition/perspective wasn't in the right place, I could never achieve what I considered perfection because I was either so afraid of being like every other girl and worrying too much about my body, or too caught up in not being happy with myself that the solution was stress eating or short term binges of exercising when I would get self-conscience. So I was a mess!

I love food.

Lets get that straight. A this point in my life I hated salads 😝, veggies, and anything that was not heavy in carbs and/or fats.

Food became my coping strategy

After a hard day at work, I would hit up a barbeque joint and eat away my feelings with fried chicken, potato wedges, hushpuppies and piles of honey mustard or ranch. (Imma be honest, my mouth is watering rn). I was sucker for sweets, but instead of just enjoying one, I couldn't stop myself and would eat and eat and eat until I just couldn't hold anymore (7-8 cookies later). What a rough spot to be in.

My sisters and mom kept pushing me to eat healthy, which always felt like somewhat of an insult, but was meant with all the good intentions in the world.

My endo told me that because it was easier for me than most people to manage my blood sugars, I should get tighter control of my spikes. I began considering the following:

Co 6:19  "What? know ye not that your body is the temple of the Holy Ghost which is in you, which ye have of God, and ye are not your own?"

This was Jesus in response to my (then) perspective on my body: "WHAT?" 😂

Essentially, I began over 6 months ago trying to change my perspective on food. 

 I got on a bandwagon with my sisters and my mom and they helped me, supported me, and cheered me on. I now still get to eat good things, just with less of a focus on living to eat. I will go into more detail on just how I changed my eating habits and what that looks like for my diabetes in a future post, but right now I just want to say this.

I still love food!

I eat a good brownie, piece of cake, or box of french fries every once in awhile. But now, instead of not caring, I also keep in mind how these decisions are affecting my body. My arteries, my heart health, my blood sugar. These reminders help me reign in my tendencies to stress eat or binge sweets. My overall lifestyle has changed, but when I'm eating out or on Holiday I still get to enjoy food because I don't obsess over it. However, I eat GOOD yummy food that is GOOD for me on a daily basis.

Sure, I have lost weight and that's nice, but I am happier all around because I feel better and I know my body is happy because I am taking care of it. My diabetes management is SO much better too! Because I am eating purposefully.

Exercise is still hit or miss, I am not going to lie there. I'm still lazy. So we gotta work on that. 😂

But, what I want you to take away from this is: eating healthy does not mean you have to be obsessed with your appearance or body image. And being obsessed with you appearance or body image is NOT the right reason to eat healthy or change your lifestyle.

LOVING your body does not mean being happy with it being overweight and leading to health complications. You can prove to whomever that you are happy in your skin without being plus size.

Because truly loving your body means TAKING CARE of it. 

Wether that means your weight is a little above average or not. You can rest in knowing that you do what is best for your body regardless of if it lines up with cultural norms.

For me, my body is the temple of Christ. As a Christian, it is my duty to take care of my body to the best of my abilities, because I am commanded to.

So my friend, I hope you can find this happy medium and this beautiful balance like I have. Because I am loving this lifestyle!


P.S. I do actually fix my hair and wear clothes that fit me now (most of the time). Just needed to add that 😆

I almost quit social media AGAIN... and heres why

"No one will follow me if I don't post attractive pictures of me showing off my medical devices" 

"I am not like everyone else because I don't need much insulin, and my sugar stays in range without much effort, and I don't have a pump or CGM"

"I am not a 'true' type one diabetic"

"I am not relatable" 

Shew! Felt good to get that out there! I want to talk about comparing yourself to others... whether that be other diabetics, famous people, or peers. 

All of the phrases I listed above are things my inner self has struggled with, especially upon my recent re-enrtry back into the diabetes world on social media (Instagram specifically). I found myself straight DEPRESSED. Discontent with being device-less, wishing I was more like every other diabetic so I could be relatable, wishing I had more followers, more likes, more comments and better pictures. 

And so I was like, forget this! I was much better off without social media. I was happy with my glucometer and MDIs. I didn't even hardly THINK about having diabetes. Now all the sudden I'm stressed about not having devices, not having enough followers, and being so different from every flourishing diabetic on social media. UGH. 

I had a well-meaning follower tell me one time, "Maybe your a little bit cured!" because I cut out my long acting insulin while on a mission trip. "I would've been in DKA!", she says. 

I was recently refused the opportunity to participate in a clinical drug trial by higher ups because, "My pancreatic function was too high" although my doctor, research coordinator, and diabetes educator agreed I was PERFECT for this study and classically diagnosed type one diabetic (abnormally high GAD antibodies and all). The drug they were testing was supposed to stop or delay the autoimmune process. 

I don't have my pump or CGM right now because I don't have medical insurance, and I was totally fine without them until I got back on Instagram and felt like a total outsider to the diabetes community. 

I have felt like an outsider most of my life, ever since I was old enough to realize how different I am. I dress different than most people because of my personal convictions, I don't do things other people do or go the same places as other people my age. So its not a new feeling. 

When I was first diagnosed I was SO excited to go to a women's conference hosted by our local JDRF chapter. I was 16 (newly diagnosed) and with my mom. All the girls had devices. They all had been diabetic since they were 5 or 6 years old. I felt so, "not in the loop" around these people who I was supposed to share common ground with. This group that was exclusive, with a focus on a rare disease and difficult lifestyle that I and everyone else there had. Surely I should have felt normal here!

But I didn't. And you know what? Its OKAY to be different. Its OKAY to share common ground, but on different levels. Your self worth does not come from how relatable you are to people on social media that you probably don't even know or other diabetics who have better or worse numbers than you.  

Its okay if you take 5 units of Tresiba and have a high carb ratio! Its okay if you need 50 units of long acting and barely any short acting! These things do not make you type one or not type one. I have autoimmune diabetes, and my bet is you do too. I can grantee we are different in how we manage or illness and you know why?  Here's some relieving news: WE DONT LIVE IN THE SAME BODY OR HAVE THE SAME BRAIN! Autoimmune diabetes IS NOT YOUR FAULT. You have little contol over what your body does or does not do.

For me, my fulfillment, my self-worth, and my overall contentment is based in Jesus Christ. Its so easy to look at other people (especially as women) and wish we were just a little skinnier, a little more popular, or had clothes that were a little cuter or more revealing. 

But YOU my friend... YOU are SO much more than what everyone else's social media posts tell you you need to be. You be YOU. You do YOU. 

2 Corinthians 10:12

"For we dare not make ourselves of the number, [for they] comparing themselves among themselves, are not wise"

1 Corinthians 6:20

"For ye are bought with a price: therefore glorify God in your body, and in your spirit, which are God's"

So whether you are a mom struggling to fit into every mold that every other mom is trying to smoosh you into, or you are a teenager discontent with how you pose for photos, how you look, or what you have to wear, or a diabetic who feels like no one gets you, please remember you are unique, perfect and I think you are AWESOME. 

So I almost quit social media AGAIN. But I didnt. Because I want to keep sharing, learning, and relating in any way that I can.

Death by Holidays (goodbye honeymoon phase)

Alright, I don’t know about you guys, but when I’m stressed out, super busy, or on vacation, I get a little lax in my management if you know what I mean. Finals week, Thanksgiving, and Christmas vacation are all perfect examples of this. Finals week was, well, stressful. And when I’m stressed out, I like to eat. I mean, who doesn’t love a good a candy bar when you’re on the brink of mental collapse? (Okay, that may have been a slight exaggeration, but you know what I mean) When I say “lax in management” I don’t mean that I completely stop taking insulin or ignore a bad BG reading. It means that I snack more than I should, don’t check as often as I need to, and fail to stay within my normal carb range. I try to shoot for around 45-60 carbs meal. Well obviously, that goal is not even realistic on Thanksgiving.

Let’s start with Thanksgiving. Lots of food, right? Want a general idea of HOW MUCH food? I took nine units of insulin to account for my loaded down plate. At a bolus ratio of 1-15, that means it was about 135 carbs. Post-Thanksgiving meal, my tummy was NOT happy with me. As a diabetic, I rarely eat until I am stuffed. And this was the first time since the beginning of this year (my diagnosis) that I had really gorged. And oh boy did I pay for it! The stomach cramps that night that followed were NOT pleasant. I can’t remember if I checked my BG before bed or not. Forgetting to check my BG before bed was a bad phase for a while (more on that later). So after Thanksgiving I seemed to be having difficulties staying in range. So I monitored my carb intake, insulin dosage, and BG’s closely for a couple days then decided to bump up my bolus rate. So I started doing a unit to every 12 carbs instead of 15. I also upped my daily injected of Lantus from 5 to 7 units.

So that was Thanksgiving. Now on to Christmas.

Pretty much same story, different holiday. Poor control, snacks, too many carbs, too much food in general, ect, ect. This past week I was out of state visiting a friend before school starts back. All week I kept seeing a reoccurring high post-prandial (after meal) BG. So, I upped my intake again, and tried 1-9 for a couple meals, with results still above my preference. Another bump down, and I seem to be back on level ground with a 1-7 ratio.

Now I’m wondering if I might need to give Lantus another bump up, considering I went to bed last night with a BG of 113, and woke up with a 130.

I said all that to say this: Honeymoon period is obviously either over, or in fast decline, and I can’t help but wonder if I was responsible. Did all that over-eating, inconsistent snacking, and irresponsible management finally send my pancreas over the edge? It’s a question worth asking, but I’m not sure if I’m brave enough to admit all of the above to my endo next week. He’s bound to notice those highs and missing bedtime BG’s. Good thing he is a super nice guy.

 ~Regretful T1D

Long Acting Insulin

Lets talk about it for a moment, shall we? Lantus and I have never gotten along. From the first injection at the hospital, to last nights affair. Lets start with the hospital story first.

Well, actually, let me describe long acting insulin's purpose to those of you reading who don't know what it does. Long acting insulin does just as the name implies- it acts over long periods of time to maintain your blood sugar. It absorbs slowly as apposed to fast acting insulin (ex. Humalog or Novalog) which works quickly with your body's digestive system to process your food. Fast acting insulin is takin 4-6 times a day (any time you eat or need and extra insulin boost to bring down a high).You take long acting insulin at the same time every evening and it works throughout the next 24 hours to maintain your BG.

Back to the hospital: Very first injection of Lantus happens the night I am diagnosed. The nurse injects it into the back of my arm and it stings going in (which it is apparently not supposed to do, but all insulin stings going in this gal). 5 minutes later the injection site was still burning, along with welting, and itching. My first thought- Great, I'm allergic to insulin. We call the nurse in there to take a look at my lovely little welt, and she states she's never seen it do that before. She will call the doctor and let us know what to do. She comes back with an icepack and says that the doctor said its just skin sensitivity. So we hold ice on it until it feels better. It did this for days after. I finally bought an icepack and just always had it ready when I took Lantus. Eventually it stopped welting, so that was good.

That was my first experience with LAI (long acting insulin. Your welcome for my made up, unofficial abbreviation :b). I set an alarm on my phone that goes off every night at 10 pm, because I've found I'm not very good at remembering to take Lantus. It frequently gets forgotten, especially when my phone is dead or I go to bed early. Which is a story coming up here in a sec. Before we talk about early bedtimes though, I want to tell another story.

One night, about a month ago, ten o'clock came around and I COULD NOT find my Lantus pen. Like, freak out mode, OH MY WORD what did I do with it. The night before I had taken it at work. I often work a closing shift which puts me getting off around 10:30, if not later, so I take my insulin at work. Another privilege of the pump my friends: No more having to stop in the middle of stuff for Lantus. If only my pump would get here.. another story for another time.

So I cant find my Lantus. I'm freaking out. Of course that was my last pen I had in reserve, and we have no 24 hour pharmacies around us. We called my emergency endo number and the sweet endocrinologist on call at the hospital told me to check my BG every 3-4 hours and inject fast acting insulin according to my sliding scale: "And hopefully you won't get ketones" she adds. Lovely. It was going to be a looong night. Before I went into panic mode, I called work to see if anyone was still there and if they could look to see if my pen was anywhere around. Long story short, my Mom and I made an 11pm trip to CFA to grab my Lantus pen that a coworker had found under one of our coolers. Dumb Kelby. Apparently it fell out of my pocket. BUT, I took Lantus that night and the inevitable all-nighter stabbing catastrophe was avoided.

Now we are to the whole point of this post, with a surprisingly shorter story than those above. I had a headache last night, went to bed at 9pm and accidentally turned of my Lantus alarm in my sleep instead of hitting snooze. Woke up at 7am, realized I HAD NOT taken and Lantus, told my Mom who preceded to say my FULL name in exclamation followed by a, "Check your sugar now!". It was 99. Wow! Gods good, right? I took Lantus right after I checked my sugar, then made it through the day without any major highs or lows. Thank God.

Moral of the story: Lantus hates me. The End.

Decisions, Decisions

Omnipod or One Touch? College Now or Later? Pale orange or bright orange?

Well, the good news is, my A1C at my appointment Friday was 6.3! Perfection! Dr V still thinks I'm in my "honeymoon stage", which means my pancreas is still producing a significant amount of insulin.; but because T1D is an auto-immune disease, my pancreas will continue to produce less and less insulin, until it no longer produces any. My Dr thinks that will happen between now and the end of next year. He says right now I have great control of my diabetes and my numbers look great! Thank the Lord : )
He (my doctor) also thinks that an insulin pump is great option for me! I have literature on 5 different pumps, and Ive narrowed it down to 2. We are waiting on a call from the diabetes specialist to schedule an appointment; she will tell us more about the pumps and what we are looking at financially. Truth of the matter is: I'm excited! Although it does feel a little strange, because this is the first time I've realized how serious diabetes really is. I will have a device attached to me that sustains my life; but if it malfunctions, could end my life. How crazy is that?!
My friend with T1D that has had it her whole life, is in the process of figuring out if she is a candidate for a pancreas transplant. She said if it works for her I would have a personal experience to go off of if I wanted to consider it. I'm like, woah, I don't think I need an organ transplant. Holy Cow! That really makes diabetes seem bigger and more serious!

College is a long story. The decision there is whether I should wait a year to save up/pay off my car, or to jump right in this summer.

Last but not least, we are painting our new house this week.... what color should I paint my room? Should I go with a peachy, more subtle color? Or a nice, bold, color? What to do, what to do...

So, life is crazy. Being almost 17 years old is crazy. Lots of decisions coming up that require lots of prayer. Shew! Lord, give me strength and wisdom beyond my years! ; )